Un interessante articolo in cui ci si indigna giustamente per il fatto che nel 2012 negli Stati Uniti solo l'1% dell'intera spesa (pubblica e privata) per l'Autismo è stata destinata agli adulti affetti da autismo.

More than $330 million is spent each year on autism research—but only 1 percent of that is focused on adults.

by Elizabeth Picciuto - www.thedailybeast.com

At the beginning of April, the Empire State Building lit up blue in honor of Autism Awareness Day. The day marked a chance to raise awareness—and, not incidentally, to raise funds for autism research.

In 2012 (the most recent statistic), private charities and the federal government spent $331,949,933 on autism research.

The Office of Autism Research Coordination (OARC), a department within the National Institutes of Mental Health that tracks autism research and spending, issued a report on April 19 (available here) that tracked autism research money spent in 2011 and 2012.

OARC’s findings disturbed the Autistic Self-Advocacy Network (ASAN), a rights group run by and for autistic people. They noted that the study showed that only 1 percent of research money was spent on needs of adults with autism—and this actually represented a decline from 2 percent in 2011.

Further, only 7 percent of research dollars in 2012 were spent on services, down from 9 percent in 2011. The bulk of rest of the money was spent on researching causation, treatment, diagnosis, and biology.

When autistic children grow to be adults, the supports they—and their families—had been receiving can be taken away.

Author Susan Senator is mom of a 26-year-old autistic son, Nat Batchelder. She recently wrote a book, Autism Adulthood: Strategies and Insights for a Fulfilling Life.

“One percent for adulthood? That’s outrageous. With all the people graduating from the school systems? This type of allocation is very outdated. We have to realize the changes that have occurred due to the nation’s policy of inclusion in schools (IDEA). We now have autistic people living, working, and playing in the community,” Senator said.

“Autistic people have always existed but have not been in schools, the workplace, our neighborhoods, our busy complicated world,” she continued. “They have been marginalized, institutionalized, abused, hidden away, mocked, bullied, and at very least misunderstood, misdiagnosed. The neurotypical population needs to be educated as to what autism is and how to include everyone.

To that end, we must exponentially increase the funding for services, education, accommodations, and adulthood issues.”

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